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Pages by
Government agencies
CFS
Organisations
Advocacy Sites
CFS
Information Sites
CFS Sites on
the Web
Need a CFS
Specialist?After tons of emails asking for CFS specialists all over
the world...I'm starting to compile a list of site that will offer many
choices for CFS Specialists everywhere
Pages by Government Agencies and Central Authorities
American College of Physicians (ACP).
AHA Central Office. This site
is an integral extension of the AHA's Central Office on ICD-9-CM.
AHAData.com provides comprehensive
healthcare data online. American Psychiatric Association.
American Psychological Association.
Chronic Fatigue
Syndrome Information Page has been put together by the National
Institute of Allergies and Infectios Diseases. It is a good overview of
the illnesses and current theories about its cause. A CFS page has
been set up by the Centre for Disease Control (CDC), with sufficent
information on who gets CFS, popular treatments, ideas on its cause and
more. Canadian Institute for Health Information.
Canadian Medical Association Online (CMA).
CDC Home Page Center for Disease Control
and the CDC WONDER, which provides a
single point of access to a variety of CDC reports, guidelines, and even
numeric public health data.
ClinicalTrials.gov Linking
patients to medical research.
Federal
Register; 1995, 1996, 1997 and 1998. Food and Drug Administration, with pages on
Nonprescription
Medicines: What's Right for You?
MedSpecNet Canadian medical affiliates.
NIAID (USA). National
Institute of Allergy and Infectious Diseases Home Page, has produced several fact sheets
and brochures on CFS. NIDCD National Institute on Deafness
and Other Communication Disorders Webpage (part of NIH, USA).
Social Security Online (USA) has a
factsheet on Providing
Medical Evidence to the Social Security Administration for Individuals
with Chronic Fatigue Syndrome; a Guide for Health Professionals.
The CFIDS Association of
America U.S. National Library of Medicine
(NLM). The Worldwide Electronic CFIDS/ME Action
Network (WECAN).
AYME is the Associtation for Youth with
Myalgic Encephalomyelitis, based in England. The CFIDS Association of America is the
nation's leading charitable organization dedicated to conquering chronic
fatigue and immune dysfunction syndrome (CFIDS). The National CFIDS Foundation, Inc.
in America was founded in February 1997 by two 14 year activists of the
CFIDS movement. The goals of the Foundation are to help fund medical
research to expedite a treatment and eventual cure, to provide
information, education, and support to those people who have CFIDS and
related illnesses including FMS, GWS, and MCS. Two Australian links: The Northern Rivers ME/CFS Society
web page, with details of supports groups in northern NSW and southern
Queensland; and the ME Society of
NSW has a web page, with info on becoming a member and services
available. MPWC Is Medical
Professionals With CFS. This group was formed in 1993 by Gail Dahlen and
Meghan Shannon to give MPWC's an opportunity to coordinate their efforts,
support each other, and make a difference for all PWC's.
RESCIND ("Repeal Existing Stereotypes
about Chronic, Immunological and Neurological Diseases"), Inc. is a non-
profit 501(c) 3 corporation. RESCIND's primary goal is to change the name
"CFS" to something more accurate and less pejorative.
The Memoriam Site for
PWCs is a list of CFS sufferers of all ages. Add yourself or a sick
friend and help remind everyone of the pervasiveness of this disease -
both sexes, all ages. WECAN has got a special May 12, 1998 CFS Awareness
Day site going, with details of the Washington Rally and people's
efforts from around the world.
Abstracts
presented at the Sydney 1998 CFS
Conference show strong support for the case of CFS as a physical
illness, and some interesting information on possible causes.
Ted Shaw's CFS Pages include a database
of 1100 papers on CFS with abstracts categorised into 58 topics.
"Somebody help M.E." is an
easily read, comprehensive book about living with CFS/ME. Written for
young people with CFS and their families, information about it can be
found at the AYME (Associtation for
Youth with Myalgic Encaphalomyelitis) web page. CFS Sites on
the Web Chronic
Fatigue Links on the Internet CFS/ME Information - New Site by
Roger Burns CFS/CFIDS/ME/...
Reference Guide© v1.2
ME Chat
Page
Invisible Disabilities - Chronic
Fatigue Syndrome
If you know of any links that offer
information on CFS Specialists anywhere, please email me and I'll add a
link. Thanks!!CFS Organizations
Advocacy
Sites
CFS Information
Sites
Jaime has compiled and
categorised many CFIDS-related sites at the Chronic Fatigue Syndrome Info Source .
Chronic Fatigue Syndrome FAQ
If you are planning on
leaving after this page, please sign my guestbook.
Thanks!!
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